Supporting those affected by bereavement by MPS, Fabry and related diseases.

Respectful and compassionate care for a child or young person and their family members at the end of life, ensures their physical, psychological, social needs are met. Ways we can help;

If you would like to talk to someone confidentially for as long as you need, you can call our helpline. Our support & advocacy team understand how hard it can be to talk about what you are going through and are patient and empathetic.

You can create your own special remembrance website in tribute to your loved one, where you can share memories, thoughts and stories with family and friends as well as light candles, add music, photos and videos. By creating a Remembrance tribute you can also collect donations in your loved one's name, organise events and celebrate anniversaries.



Helpline: 0345 389 9901

Email: [email protected]